Saturday, June 9, 2012

Updates on several things

Sahara's car is in the body shop.  There was an insurance issue because the driver of the other car was excluded from the insurance of the car she (the other girl) was driving.  But, I have under-insured and uninsured on my policy (THANK GOD) so everything is covered.  Including a rental car for up to 20 days.  This is necessary because I am taking summer classes this year and Sahara has to be responsible for getting Canyon to his three therapies every week.  Plus, this will not leave them trapped at home all day while I'm in class.  They can go to the library, park, rent a movie,...  This morning, she took herself to Tech to take her ACT again.  If we didn't have the rental, we all would have had to get up at 6:30 to take her.

Summer classes are a week underway.  4 more weeks to go for summer I then I have summer II.  It has been HARD.  I'm in class for 4 hours, home for 2 for lunch and to get as much homework done as I possibly can, then back for 2 1/2 more hours and home again with another 2-3  hours of homework.  My kids are not happy.  Canyon especially.  He does not like Mommy being gone.  He may sit in his room for hours watching movies, but he just wants to know I am here.

About 2 months ago I took Canyon to the doctor for constipation issues (again).  While there the doctor did the regular check up things and noticed that he wasn't getting any response to his reflexes.  You know, how they tap on your knee and your leg kicks out a little.  So, he had Canyon do a series of neck x-rays.  Canyon only co-operated for the first 7 but he was suppose to have 12 pictures taken.  7 was good enough.  Then we were set up with an appt at the neurologist.  We went last week.  She had Canyon do something such as squeeze his hands together while she did the tapping.  That worked.  He does have reflex, he just has to be doing something else with a different part of his body for it to be seen.  That appt led to conversation about other issues.  He has sleep apnea bad.  So, we are scheduled for a sleep study the day after his birthday.  He also has not been seen by the Genetics Clinic for several years because the last time I went we were there 3 hours past our appt and we just left.  The neurologist assured me that there is a new doctor in that department and highly recommended that we go again.  She said, of course, all the doctors are very familiar with Down Syndrome at Children's, but that they always rely on consult for different issues with a specialist in the field.  So, in November we head back again to Genetics.

That's about it.  The house is a wreck, we have no food, the laundry is piled up, the bills haven't been paid.  I don't have time for anything during the week, so...I better get busy now!!





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